Open access
Sep 2026
Measures of mortality among people living with fibrodysplasia ossificans progressiva in the United States, 2017-2023
Abstract Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disease characterized by heterotopic ossification in connective tissues. Few epidemiologic studies have investigated mortality rates among people with FOP. We conducted a retrospective cohort study to understand mortality in people with FOP....
A. Breskin, Victor O. Popoola, Michelle Davis et al.
· JBMR Plus · 0 citations