Author

A. Newson

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Open access Sep 2026

Environmentally responsible human genomic data governance: points for consideration

We introduce five points for integrating environmental ethics into human genomic data governance: (i) recognizing the ethical imperative to consider environmental impacts of human genomic data; (ii) fostering collective responsibility for environmental harms; (iii) prospectively assessing benefits and harms; (iv) antic...

N. Ghinea, Gabrielle Samuel, Wendy Xin et al. · npj Genomic Medicine · 0 citations

Review Open access Oct 2026

Genomic Data Governance Challenges Between Research and Clinical Care: A Scoping Review

ABSTRACT Introduction The translational nature of genomics highlights the importance of developing a robust genomic data governance framework. To inform the development of such a framework for Australia, we conducted a scoping review to identify genomic data governance and management differences between research and cl...

Alice M. Kim, Bronwen Merner, Mark Taylor et al. · Health Expectations · 0 citations