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Agnès Dumas

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Open access Aug 2026

Challenges in the care of rare vascular liver diseases: Insights from patients, health care providers, and patient organizations

Background: Patients with rare vascular liver diseases (VLDs), including non-cirrhotic portal vein thrombosis and Budd–Chiari syndrome, may develop severe complications from an early age. Yet, little is known about their healthcare experience and unmet needs. This study aimed to identify key challenges in the care of t...

M. Guilabert, Agnès Dumas, E. Gil-Hernández et al. · 0 citations

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