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Author

C. Hoving

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Open access Sep 2026

Facebook as a Lifeboat: An Interview Study Exploring the Role of Facebook in Supporting Parents of Children with Rare Diseases.

Parents of children with rare diseases face unique challenges due to scarce medical expertise and limited information sources. Social media, particularly Facebook, have become a vital (and sometimes the only) space for parents to access information, share experiences, and find emotional support. This study examined how...

B. Victor, N. G. Yılmaz, C. Hoving et al. · 0 citations

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