Author

M. Hillen

2 papers indexed here

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Open access Sep 2026

Facebook as a Lifeboat: An Interview Study Exploring the Role of Facebook in Supporting Parents of Children with Rare Diseases.

Parents of children with rare diseases face unique challenges due to scarce medical expertise and limited information sources. Social media, particularly Facebook, have become a vital (and sometimes the only) space for parents to access information, share experiences, and find emotional support. This study examined how...

B. Victor, N. G. Yılmaz, C. Hoving et al. · Journal of health communicat... · 0 citations

Open access Aug 2026

Clinicians' Perception and Management of Cancer Patients' Decision Making Burden.

Clinicians' responses to perceived decision making burden in patients were variable, and discussions about how to navigate tensions between autonomy and avoiding harm could foster greater unity among clinicians on addressing patients' burden in SDM.

F. Huijgens, Inge Henselmans, M. Huisinga et al. · Journal of general internal... · 0 citations