Translating scores into meaning: a co-produced forum for patient-reported outcome measure interpretation in pediatric congenital heart disease
A PROM-anchored participatory forum can make interim outcome data usable before the end of data collection and translate them into shared interpretation, action planning, and family-friendly dissemination, and forum-based formats appear to provide a solid foundation for the collaborative interpretation of data from pat...
Jana Willems, Anna Eyrich, Jens Terjung et al.
· Research Involvement and Eng... · 0 citations