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Author

Virginia Hernández-Gea

2 papers indexed here

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Review Open access Sep 2026

Patient pathways for rare liver diseases: a European template developed by ERN RARE-LIVER

Rare liver diseases are associated with diagnostic delay, fragmented care, inconsistent management, and limited patient support. Patient pathways may help address these challenges by translating clinical guidance and patient priorities into practical, coordinated care processes. This manuscript presents a European temp...

S. Raevens, Renée Duijzer, A. Fodor et al. · 0 citations
Open access Aug 2026

Challenges in the care of rare vascular liver diseases: Insights from patients, health care providers, and patient organizations

Background: Patients with rare vascular liver diseases (VLDs), including non-cirrhotic portal vein thrombosis and Budd–Chiari syndrome, may develop severe complications from an early age. Yet, little is known about their healthcare experience and unmet needs. This study aimed to identify key challenges in the care of t...

M. Guilabert, Agnès Dumas, E. Gil-Hernández et al. · 0 citations

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