Sep 2026· Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen· 0 citations· 23 references
Medicine
TL;DR
Reflection questions presented in this article can assist research teams with the development and use of personas and hold potential for participatory research in healthcare but is susceptible to biases.
Abstract
Participation is a key element of practice-oriented innovation projects. At the same time, there is a growing interest among researchers, healthcare providers, and experts by experience in acquiring the relevant methodological skills. However, there is a lack of specific scientific descriptions, for example regarding a systematic presentation of the persona method in participatory contexts. The persona method offers a fictional, evidence-based representation of user perspectives and illustrates their needs, expectations, and contexts. It promotes transparency and a shared understanding within teams through narrative, creative, and visual elements. Personas integrate the collective experiential knowledge of experts without requiring individuals to disclose their personal experience, which is a particular advantage when working with vulnerable groups. This allows needs to be captured in a context-specific and comprehensive manner without compromising the anonymity of those involved. The persona method therefore holds potential for participatory research in healthcare but is susceptible to biases, particularly through stereotypical simplifications. A participatory, reflective development process can counteract these risks, but it requires methodological expertise, sufficient resources, and a critical examination of the underlying assumptions. The reflection questions presented in this article can assist research teams with the development and use of personas.
Abstract Objective This study explores why researchers selected the Person-Based Approach (PBA) to intervention development for their studies and their perceptions of the strengths and limitations of using the approach in practice. Design This is a qualitative interview study, which uses an Interpretive Description app...
Lydia Holt, S. Denford, Lucy Yardley· BMJ Open· 0 citations
This paper outlines a specific application of participatory action research methodology for engagement with diverse and under-represented ethnic communities experiencing the psychological impact of political and social divisions. The project we present has developed a ‘circle of enquiry’ method of engagement with repre...
Joy Bevan, Katherine Broomfield, C. Sealey· Journal of participatory res...· 0 citations
This essay identifies lessons related to epistemic pluralism, dissensus, serendipity, contextual constraints, participatory approaches, paradigmatic differences, and power relations, and develops an architecture that is operationalized through a co-design rationale canvas, enabling the iterative documentation of both t...
Lars Veldmeijer, B. Wartena, G. Terlouw· PLOS mental health· 0 citations
Human-centered design is a participatory approach that centers those encountering a challenge to develop solutions that are desirable, feasible, and contextually grounded. Increasingly, health researchers are adopting HCD to advance equity by elevating lived experience and community knowledge. This brief report explore...
Elizabeth Chen, Vivian Romero, Jessica Otero Machuca et al.· Journal of participatory res...· 0 citations
ABSTRACT Background Patient engagement is a critical component of high‐quality research. When implemented intentionally, partnerships with patient partners and other knowledge users ensure that research findings are relevant and meaningful to intended users. Integrated knowledge translation (iKT) is a collaborative app...
Simran Jawanda, A. Toulany, T. John et al.· Health Expectations· 0 citations
Since the 1990s, the authors have been guided in their rigorous qualitative research by a central ethical question: to what extent is it justifiable to collect data solely for academic purposes without contributing to the well-being of the population being studied, particularly vulnerable groups?
Based on earlier (par...
I. Hutter, Christine J. Fenenga· Journal of participatory res...· 0 citations
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