Family caregivers’ experiences in dementia villages: a model for sustainable and meaningful care

Abstract

Introduction This study examined family caregivers’ experiences of dementia village care and explored their associations with caregiver reactions and residents’ thriving. Methods The study utilized an explanatory sequential mixed-methods design. Thirty family caregivers completed questionnaires assessing caregiver reactions, health-related quality of life, and resident thriving. Subsequently, 16 of these caregivers participated in semi-structured interviews. Quantitative data were analysed using descriptive statistics and correlation analyses, while qualitative data were analysed using thematic analysis. Results Family caregivers reported high levels of caregiver esteem and low levels of burden, and residents were perceived as thriving, particularly through positive relationships with staff and high-quality care. Although admission was emotionally challenging, caregivers experienced relief, reassurance, and increased trust. Resident wellbeing was linked to meaningful activities, social engagement, supportive staff, and outdoor access. However, caregivers also reported challenges regarding communication, involvement in care decisions, and balancing resident autonomy with safety. Overall, caregiver experiences reflected an adaptive process marked by both trust and uncertainty. Discussion The findings indicate that dementia villages promote resident thriving through supportive environments, social relationships, and meaningful engagement. Family caregivers viewed the model positively and maintained active involvement post-admission, suggesting that dementia villages foster more sustainable care by bridging professional support with ongoing family partnership.