The Journey with paediatric cancer: reflections on its impact on patients and their families

Abstract

Introduction the experience of paediatric cancer presents intense emotional and psychological challenges for both children and their families. This study explores the lived experiences of parents caring for children with cancer at a public hospital in KwaZulu-Natal, South Africa, highlighting the multidimensional impact of the disease. Methods a qualitative case study design was employed. Fifteen semi-structured interviews were conducted with parents of paediatric cancer patients at a tertiary public hospital in KwaZulu-Natal, South Africa. Data were transcribed verbatim and analysed manually using inductive thematic analysis. Results two major themes emerged: the multidimensional effects of cancer on the child, and the multifaceted impact on the family unit. Children exhibited signs of emotional despair, fear of death, academic disruption, social isolation, and distress related to medical procedures. Parents reported significant psychological trauma, financial hardship, disruption of daily life and career, and strained marital and family relationships. Lack of information about the disease also compounded stress among caregivers. Conclusion paediatric cancer deeply affects not only the physical health of children but also their emotional well-being and family stability. The findings underscore the urgent need for integrated psychosocial support, including mental health services and caregiver education, within paediatric oncology care settings.