Sep 2026· JAMIA Journal of the American Medical Informatics Association· 0 citations
Medicine
TL;DR
This work proposes reframing institutional data commons as governance-aware intermediaries to ensure secure, efficient and sustainable use of controlled-access biomedical data, and proposes a federated architecture that decouples storage from authorization.
TRACE was designed to support several data-sharing elements highlighted in the 2025 SPIRIT and CONSORT statements by providing controlled and auditable workflows and supporting reproducibility at the level of data and analysis code.
Marcel Müller, Benjamin P. Geisler, S. Shamas et al.· BMC Medical Informatics and...· 0 citations
This research offers a pragmatic blueprint for digital transformation in resource-constrained settings, contributing to the discourse on leveraging data architectures for improved public service delivery and evidence-based policymaking.
Background Effective livestock disease surveillance depends on scalable, privacy-conscious access to distributed diagnostic data, yet current systems are constrained by fragmented datasets, inconsistent formats, and limited interoperability. Objective This paper compares three approaches for accessing distributed anima...
S. Noor, Ruben Taelman, J. Degroote et al.· Frontiers in Veterinary Scie...· 0 citations
Background Federated reuse of participant-level biomedical data enables public health institutions, healthcare providers, and researchers to analyse data without moving it from its source, providing access to a more diverse data ecosystem. Data governance determines whether this reuse is trustworthy, addressing the leg...
Lauren Maxwell, Melanie Stecher, M. Panagiotopoulou et al.· Open Research Europe· 0 citations
A framework for standardising access governance using machine-actionable access conditions that addresses key challenges identified in the Dutch context — including fragmentation, administrative burden, and inconsistent decision-making — and is applicable across European data infrastructures is presented.
L. van der Meer, Ahmad Hesam, Jetze Touber et al.· International Journal of Pop...· 0 citations
Fragmented electronic medical records (EMRs) across healthcare institutions hinder coordinated care and increase cybersecurity risks for sensitive patient data. While blockchain has been proposed for medical data governance, existing architectures remain often overly complex and lack minimal, verifiable implementations...
Jian-Hao Yuan· Applied and Computational En...· 0 citations
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