The current legal framework is analyzed, the existing need for legislative action is identified, the existing need for legislative action is identified and a practice-oriented regulatory proposal is developed.
Abstract
The increasing use of genetic diagnostic methods enables ever more precise, personalized medicine. At the same time, it leads to the collection of genetic data that may also contain information relevant to third parties. Such methods are also now routinely used in transplantation medicine. Nevertheless, it remains unclear whether physicians are permitted or even required to disclose the genetic data of deceased organ or tissue donors to their relatives. This thesis addresses this regulatory gap. Following a discussion of the scientific foundations, it analyzes the current legal framework, identifies the existing need for legislative action and develops a practice-oriented regulatory proposal. This Title is also Available as Open Access.
The purpose of this paper is to provide an overview of the state of the art on the communication of genetic test results in both clinical and judicial practice in Europe, with a specific focus on Italy.
P. Di Lorenzo, M. Marisei, Marco Macculi et al.· Frontiers in Sociology· 0 citations
Applying a bioethics framework of autonomy, beneficence, nonmaleficence, nonmaleficence, and justice allows these issues to be examined, and current protections to be evaluated for the purpose of instituting change.
Ava Borgess· Journal of healthcare manage...· 0 citations
Critical gaps in public knowledge in genetics are highlighted, emphasizing the need for improved genetic education, including incorporating genetics into school curricula and launching targeted awareness campaigns to promote informed decision-making.
S. Mercier, F. Petit, M. Misrahi et al.· medRxiv· 0 citations
Experts anticipate continued growth in haploidentical transplantation alongside the expansion of advanced immunotherapies such as CAR-T cells, however, regulatory, financial, and infrastructure constraints may delay their widespread implementation, particularly in middle-income settings.
Danielli Oliveira, B. Cabral, Roseli Monteiro et al.· JOURNAL OF BONE MARROW TRANS...· 0 citations
This article is devoted to the legal regulation of the use of genomic editing technology in individual states. In general, it can
be stated that in most legal systems there are restrictions on genomic editing in relation to hereditary genes, however, in rare cases
exceptions are allowed, which must be recognized as justified in view of the reality of threats to human life and health. Using the method
of comparative legal analysis, the author identifies the most optimal experience that can be useful to the domestic system of law-making
on the way to forming legislation in the field of public health protection.
Anastasia E. Kraynyukova· Civil society in Russia and...· 0 citations
