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Characterization of the genotypic and phenotypic spectrum of TCF7L2-related neurodevelopmental disorder (TRND).

Sally Nijim Mimi Kim Melissa Denish Michael V. Gonzalez Joseph M. Zinski Claudine Rieubland Dominique Braun Elsebet Ostergaard A. Shillington L. Faivre J. Maraval A. Garde C. Philippe F. Tran-Mau-Them Amy Crunk Eric Vilain U. Irvine R. Daber Emily Westheimer William D. O'Callaghan Jianhua Zhao N. Malani Ingrid Chen Kaylee Scozarro Michelle Barbosa Andrea J. Cohen Arthur Ko Emmanuèle C. Délot Georgia Pitsava Seth I. Berger L. Auriga Ya Cui Changrui Xiao C. H. King Ivan de Dios J. Lotempio M. Almalvez Vincent A. Fusaro Wei Li Jamie L. Fraser Meghan Delaney Leandros Boukas Bojan Losic E. Hsiao John Harting Krista K. Bluske Rachid Karam Sami Belhadj Megan H. Hawley B. Callewaert Maria Iascone A. Cereda Cecilia Daolio T. Hershkovitz Jean-Marc Good K. Steindl Tanja Frey Anita Rauch A. Afenjar C. Mignot J. de Sainte Agathe N. D. den Hollander Yvonne Hilhorst-Hofstee S. Koene G. Santen E. Bijlsma Sara M. Berger Lakshmi Mehta R. Stoeva Clara Houdayer P. Gueguen Helene Faust Sabine Specht A. Klabunde-Cherwon M. Khelifa A. Bergmann Carol Saunders Magdalena Krygier Diana Carrasco K. Metcalfe Stephan J. Sanders David Y. Zhang R. Judy Wes Nijim David Exposito-Alonso C. Deng Jusung Kim Jozef Gécz Corrado Romano Cindy Skinner A. Lichty Ellen Linebaugh S. Skinner Maria H. Chahrour Tianyun Wang Kun Xia Hui Guo Sien Van Daele G. van Goethem Christina Fagerberg J. Graakjaer Susanne Anders H. Fink D. Ward D. Grange A. Strong P. Zwijnenburg Meghan C Towne R. Feichtinger Jennifer L. Morrison Aditi I. Dagli Jonathan Lévy Y. Capri R. Spillman Sarah J. Hart V. Shashi B. Keren Tjitske Kleefstra R. Pfundt C. Gilissen E. E. Eichler M. Brugger M. Zech Wendy K. Chung Maria Fasolino H. Dow Daniel J. Rader E. Brodkin M. Bucan Eric D. Marsh Caroline Dias D. Fajgenbaum
Jul 2026 · Genetics in Medicine · pp. 102642 · 1 citation
Medicine

Abstract

Purpose

TCF7L2 (OMIM:602228; HGNC:11641) is a transcription factor and critical effector of the Wnt/β-Catenin pathway. In 2021, 11 pediatric patients with mono-allelic predicted loss-of-function (pLOF) TCF7L2 variants and syndromic features were observed. Characterization of patients with pLOF TCF7L2 variants and neurodevelopmental features - herein referred to as TCF7L2-related neurodevelopmental disorder (TRND) - is urgently needed.

Methods

We leveraged multiple methods (GeneMatcher, DECIPHER, literature review, public/private repositories) to identify an international cohort of 76 patients with pLOF TCF7L2 variants and neurodevelopmental features and phenotypically characterized them. We also retrospectively searched for an independent cohort of adults with pLOF TCF7L2 variants (n = 11) from 60,000+ PennMedicine BioBank (PMBB) patients.

Results

Among 76 patients with pLOF TCF7L2 variants, speech delay (95.3%), craniofacial dysmorphisms (73.3%), ophthalmologic conditions (65.5%), autism (62.1%), and orthopedic abnormalities (52.6%) were most commonly observed. Phenotypic differences did not cluster by variant type or genomic locus. Among PMBB patients, an association of nominal significance with type 2 diabetes with renal manifestations (OR = 5.8; p-value = 0.03) was detected, warranting further investigation.

Conclusions

This represents the most comprehensive characterization to date of TRND, a novel neurodevelopmental disorder, defining its genotypic and phenotypic spectrum. We opened a Simons Searchlight natural history study (https://www.simonssearchlight.org/research/what-we-study/tcf7l2/) to enhance understanding of this condition.

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